Latest Events with the Hughes Syndrome Foundation
Hughes
Syndrome Awareness Week 2008
This
year the Hughes Syndrome Awareness Week will be taking place
from 7th -13th September.
Sponsored
walk 
We
will be kicking off Awareness Week with our annual London
bridges sponsored walk and hope you can join us.
Our walk starts
at 11.00am on Sunday 7th September 2008, where we will meet
outside Tower Hill tube station - the first bridge to cross
is Tower Bridge and we then make our way to Westminster Bridge,
crossing five other bridges in between. We will provide you
with interesting "bridge facts" before you start
and you'll also get to see many famous London landmarks on
your way round.
Click
here to see the walk poster.
The walk usually
covers approximately 4KM and takes about one and a half hours,
depending on your own walking pace - your family, friends,
children and pets are all very welcome.
All participants
will receive a special edition Hughes Syndrome Foundation
baseball cap kindly donated by New Era Caps.
There will be refreshments provided at the end of the walk
when you finish at St Thomas' Hospital on the south end of
Westminster Bridge and all our walkers will be awarded a certificate.
We do hope you
can join us and help our small charity raise the much-needed
funds for support and research into Hughes Syndrome.
If you would like
to register for the walk, please click
here, print out and return the form to us.
Patients
Forum
On Wednesday 10th
September 2008 from 2pm - 5pm we will be holding a Patients'
Forum here at St Thomas' Hospital.
This meeting gives
patients the opportunity to hear Professor Hughes and the
APS team at St Thomas' speak about specific aspects of the
condition including the brain, pregnancy and INR monitoring.
There will be time set aside for patients questions.
It also provides
an informal atmosphere where patients can meet one another
as we should be having a buffet lunch beforehand for those
who want to mingle.
If you would like
to come along to the Patients' Forum, please click here,
print out and return the form to us.
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