Beth Willis
“Meeting other patients through
the Hughes Syndrome Foundation
has played a huge part in helping
me come to terms with and
understand my condition”
Newly diagnosed?
If you have recently been diagnosed with Hughes syndrome, you may feel overwhelmed and isolated. This section aims to help you learn about your diagnosis, how to find support and feel more in control of your health
Signs and symptoms
Hughes syndrome can cause a myriad of different symptoms both low-grade, such as headaches, and also serious conditions as a result of blood clots. It is not necessary to have all the symptoms to be diagnosed with Hughes syndrome.
Hughes syndrome Foundation aims to ...
...achieve earlier diagnosis and the best possible treatment for patients by:
- informing doctors, nurses and GPs about Hughes syndrome
- raising awareness in the media and general public about Hughes syndrome
- offering support and understand to anyone affected by the condition
- raising funds to provide support, education and research
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