Hughes Syndrome Foundation
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Kirsty Birney

Kirsty Birney

“Throughout my experience, everything seemed so negative, so it would be great if people reading my story can find some hope. It's a hard road but totally worth it!!!”

Newly diagnosed?

If you have recently been diagnosed with APS, you may feel overwhelmed and isolated. This section aims to help you learn about your diagnosis, how to find support and feel more in control of your health

Signs and symptoms

APS can cause a myriad of different symptoms both low-grade, such as headaches, and also serious conditions as a result of blood clots. It is not necessary to have all the symptoms to be diagnosed with APS.

The HSF aims to...

...achieve earlier diagnosis and the best possible treatment for patients by:

  • informing doctors and healthcare professionals about antiphospholipid syndrome (APS)/Hughes syndrome
  • raising awareness of APS/Hughes syndrome in the general public and the media
  • offering support and understanding to anyone affected by the condition
  • raising funds to provide support, education and research

Our charity exists to support patients with APS/Hughes syndrome. Many clinicians now only use APS to describe the condition, and patients need to be aware of this fact when they visit their GP or specialist.

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© 2016 The Hughes Syndrome Foundation. Registered Charity Number 1138116. A company limited by guarantee registered in England 7268671.