• to support research into the condition


• to offer understanding and support to sufferers of Hughes Syndrome


• to offer information and education on Hughes Syndrome


• to raise funds to provide information, education and research

The research work is directed in 3 broad based aspects – the basic mechanisms of the disease (why patients develop the condition in the first place and why some patients develop thrombosis and others not), the clinical ramifications of the disease (a condition which can potentially affect any organ must impinge on all branches on medicine) and methods to improve and ‘fine tune’ treatment.

The number of published research papers on Hughes Syndrome is increasing year on year, and there are annual, national as well as international research meetings devoted to the subject. As well as papers published in journals such as LUPUS, there are published workshops, synopsis and even text books. Hopefully, within this body of work you will find the information you are after.

For further details of research into antiphospholipid syndrome, click here.

Patient support

There is a great need in the Hughes Syndrome sufferers' community for practical support from other patients with the condition. The Foundation aims to provide this support through the use of the membership scheme which incorporates support groups and by providing links to online information and groups.

Click here for further information about patient support.

Information and education

We hope we have made as much information available as possible about Hughes Syndrome on this website, click here to start reading about the condition. In addition, the Foundation frequently produces new leaflets for both doctors and patients as well as contacting the media and holding events in an attempt to increase awareness amongst the general public.

The creation of the Foundation and the involvement of the Patrons and Trustees were just the first steps in our fundraising aims. Our supporters can help in a variety of ways including making a donation, visiting the HSF shop, helping us fundraise, taking part in activities or simply by becoming a member of the Foundation. The Foundation also applies to grant making bodies in an attempt to secure more funds.

To find out how you can help us fundraise, click here.

At present, our fundraising efforts, combined with those of the Louise Gergel Fellowship, have managed to secure the post for a permanent research fellow and have provided information leaflets and booklets for patients, the medical community and the general public. With your help we aspire to fund more research into Hughes Syndrome and raise awareness of the condition so that every hospital, clinic and surgery are informed about it. If you have any of your own ideas in which the Hughes Syndrome Foundation can provide support, contact Kate at the Hughes Syndrome charity office.