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Living with Hughes Syndrome
Although there is
no cure for Hughes Syndrome, the outlook for patients is dramatically
better than in the past. In the old days, a DVT, for example,
or a stroke, was treated for a limited time – future unknown.
Now blood tests mean that proper, long
term treatment can be given, lifelong if need be.
Patients can also reduce their risk of thrombosis from causes
other than the Hughes Syndrome (APS). They should stop smoking,
make sure they are a healthy weight, and take regular exercise.
Click here to see
how you can help yourself.
Sadly, many people’s
first meeting with Hughes Syndrome is when they suffer a life-threatening
medical event, such as a lung clot (‘pulmonary embolism’)
or a stroke. Hopefully, as the condition becomes more widely
recognised by the medical profession, more people will be
individually treated, and protected for the future from the
development of these serious medical problems.
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